The Support Group Program provides persons with ALS and their families the opportunity to connect with others in the community who share similar challenges and needs. The groups are designed to provide emotional and psychosocial support as well as resources and education. Knowing what questions to ask and where to look for resources is vital. The Association currently conducts monthly support groups that meet the needs of 159 counties in the state of Georgia. These groups are facilitated by professionals and community partners to ensure maximum results. Because the needs of caregivers and children can be very sensitive, the association has developed specific groups to address those needs.

The financial hardship that families incur as the result of an ALS diagnosis can impact their quality of life tremendously. For those that may need additional help, The Kostiuk ALS Care Grant Program strives to provide some relief. This program is a reimbursement program that assists families with expenses that are not traditionally covered by private insurances, Medicaid or Medicare. It will cover expenses related to home care assistance (respite), travel costs for attendance to and from the ALS Clinics, home modifications, auto modifications and communication devices. Recipients may apply for and receive two grants per year in the amount of $1,000.00 per grant request. Grants are awarded twice a year on a first come first serve basis and will be based on availability of funds.

90% of the current ALS Community in Georgia continues to remain in their home throughout the disease process. This becomes increasingly difficult because they will require total ADL care from additional providers. This service is not covered by Medicare or private insurance companies. The Sally Panfel In-Home Care and Respite Program provides Pals with up to 12 hours of in-home care per week. The care is provided by licensed community partners of The ALSAGA Association and eligibility is based on a needs assessment.

Access to quality care and research can be challenging for those impacted by ALS. As mobility declines and the need for assistive technology increase, persons with ALS find it difficult to attend needed appointments via traditional modes of transportation. Medicare and Medicaid are very limited regarding the coverage of non-emergency transportation. The Paul B. Williams ALS Transportation Program is focused on addressing transportation needs via: non-emergency transportation, van rentals, vehicle modification and vouchers.

As the disease progresses, individuals will experience a decline in functioning as it relates to mobility and speech. These challenges can impact independence and quality of life. In some situations, specific medical and communication devices are required but not covered by private insurance, Medicaid or Medicare. The Equipment Loaner Program provides such equipment to persons with ALS at no cost. This program works diligently to obtain through grant funding or private donations such items that can ensure increased independence. The Association in partnership with community providers collaborate on the maintenance and storage of all equipment.

Information is vital to persons with ALS. As the body declines it is very important to be presented with realistic expectations regarding the disease trajectory. Skilled Care Service Coordinators are available to provide ongoing consultations through our Care Services Consultation Program. The ongoing consultations provide the opportunity to assess, educate and empower individuals and their families to make informed decisions. The coordinators are also very instrumental in identifying and making community referrals. The ALS Association is the connection between what is needed and what is available for persons with ALS, their families and caregivers.